Monday, November 23, 2015

Irlen/SSS Update

Thank you all for the lovely sweet comments, notes, emails, & Facebook messages of love, prayer & support as we travel this road with our boy. He's doing really really well & even managed to survive his appointment with our beloved Dr T. Our boy tested positive for Irlen/SSS {Scotopic Sensitivity Syndrome}, which wasn't at all a surprise to us.

We strongly suspect it is playing a huge roll in some the anxiety he is dealing with, but to what degree we weren't sure. I kept prepping him for the upcoming appointment by reminding him how awesome Dr T is & that she never minds if anyone lays on the sofas or chairs while it's not their turn. The night before he declared that he wasn't nervous at all. Morgan was delighted to hear that news because he seriously adores Dr T, & had spent many many days telling Jayden how funny & kind she is.

When it was his turn he calmly climbed into the chair next to Dr T & read the stories she asked him, but, as is often normal in our home, couldn't tell her as much about it as he should have been able to. I've often lamented that this boy's reading comprehension is low unless he takes a laboriously long time to read. He also struggled with the next set of tests she gave him, but she never makes failing seem so bad. She tells them how smart they are & how great they are for trying over & over.

She's often impressed with the coping mechanisms each child she meets has come up with in order to get through the daily grind. She noticed our boy had a habit of head bobbing. This is true, but then his whole body is often in motion so it's difficult to decide which portion of him is moving & why. However, she caught the head bobbing as a way he was coping with keeping track of things in math. I actually burt out laughing when she pointed that out & told her that normally he's so busy wrapping himself up in the curtain I can't see anything but a flash of child before I drag him back out to finish his work.

Having been through this process with our eldest it was a calmer experience watching our younger child go through this. It was so interesting to watch him hold up the tints to his eyes & watch his body either lurch {wrong colour for him} or come to a complete halt in movement. At one point he was unsure about a colour & I just looked at the Dr & pointed under the table: Jayden's foot was thumping. She suggested he try the other pair & his foot came to a complete stop as he gawked around the room & commented about how calm he felt. The child who'd been huffing & puffing when anxious or unsure of himself was breathing normally. His shoulders dropped & he just sat there looking around. When Dr T suggested he go to the window & have a peep outside our boy didn't hesitate. He told us everything he could see & then commented on how clear everything looked instead of fuzzy.

Our eldest had a change in colours too, which are closer to my current tints. As normal he'll have something like 4 billion colours in his tints. Okay, maybe only 4, but it's always amazing to me when he has so many! Jayde & I each only have 2. My tints are darkening up, which isn't a surprise to me either because I've been struggling with a lot of migraines & fatigue again lately.

We're currently waiting on SpecSavers to hustle up with our new frames so we can pop them in the mail to Dr T, who will ship them off to the Irlen Lab for us. Prayerfully our frames come in tomorrow so we can get our glasses prior to Christmas.

In the mean time Morgan will keep working with his lovely Viza Blue paper via Optix & Jayden will now be using Zena Grey via Optix. Both are part of Australian Paper & can be purchased via OfficeWorks. I had to purchase the Zena online because our local office shop {not OfficeWorks} was out of stock & our boy is desperate to finish off his math book in order to wrap his school year up.

Check out the difference in his handwriting & math skills in the photo below. I sat there smug as anything while he was working & he kept giving me the stink eye & finally said, "STOP! Are you sneaking photos of me?" "No." "Well, you're creeping me out!" So I told him to fetch his old math book & put them side by side. I also pointed out I hadn't had to ask him to rewrite any numbers which is when he started grinning too.

As an aside, the math problem on the white paper is actually one of his neater problems. Yep, neater.. I'm insanely curious to see how writing & spelling will go for this kid now & super anxious for his new glasses to come. Crazy, how colour can help or hurt, right?

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